{"id":21113,"date":"2026-11-11T01:10:36","date_gmt":"2026-11-11T00:10:36","guid":{"rendered":"https:\/\/rvh-synergie.org\/actualites\/cas-de-tumeurs-chez-les-enfants-apres-un-traitement-par-injections-dun-million-de-dollars\/"},"modified":"2026-11-11T01:10:37","modified_gmt":"2026-11-11T00:10:37","slug":"cas-de-tumeurs-chez-les-enfants-apres-un-traitement-par-injections-dun-million-de-dollars","status":"publish","type":"post","link":"https:\/\/rvh-synergie.org\/actualites\/cas-de-tumeurs-chez-les-enfants-apres-un-traitement-par-injections-dun-million-de-dollars\/","title":{"rendered":"Cas de tumeurs chez les enfants apr\u00e8s un traitement par injections d&rsquo;un million de dollars"},"content":{"rendered":"<p><!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><\/p>\n<div data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/true\" class=\"Html-Block \">\n<p>Depuis que le principe actif a \u00e9t\u00e9 approuv\u00e9 en 2019, la soci\u00e9t\u00e9 a enregistr\u00e9 un total de neuf tumeurs chez de jeunes patients. Les experts ont d\u00e9tect\u00e9 du mat\u00e9riel g\u00e9n\u00e9tique du vecteur, c&rsquo;est-\u00e0-dire le moyen de transport biologique du g\u00e8ne, dans l&rsquo;ADN de deux personnes touch\u00e9es. La soci\u00e9t\u00e9 a d\u00e9clar\u00e9 avoir correctement inform\u00e9 les autorit\u00e9s sanitaires comp\u00e9tentes de ces \u00e9v\u00e9nements. Comme le rapporte le portail d&rsquo;information suisse \u00ab20 Minutes\u00bb, les enfants malades re\u00e7oivent des soins m\u00e9dicaux et sont surveill\u00e9s en permanence.<\/p>\n<\/div>\n<aside data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor Ad-Slot-FC\">\n<div class=\"Ad-Slot-FC-Container \" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/true\">\n<div class=\"Ad-Slot-FC-Window\">\n<div id=\"ad-slot-mobile-hor-2\" data-orientation=\"hor\" data-index=\"2\" data-slot=\"ad-slot\" data-device=\"mobile\"><\/div>\n<\/div>\n<\/div>\n<\/aside>\n<div data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/true\" class=\"Html-Block \">\n<p>Le risque potentiel de formation de tumeurs d\u00fb \u00e0 l&rsquo;introduction d&rsquo;ADN vecteur est d\u00e9j\u00e0 mentionn\u00e9 dans les informations sur le produit. Le Zolgensma est consid\u00e9r\u00e9 comme l&rsquo;un des m\u00e9dicaments les plus chers au monde, co\u00fbtant environ deux millions de dollars. La perfusion unique s\u2019attaque directement aux causes de l\u2019atrophie musculaire spinale, une maladie h\u00e9r\u00e9ditaire rare. Sans th\u00e9rapie efficace, la perte progressive de la force musculaire chez les jeunes enfants entra\u00eene g\u00e9n\u00e9ralement la mort avant leur deuxi\u00e8me anniversaire.<\/p>\n<\/div>\n<aside data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-out\">\n<div id=\"ad-slot-mobile-out-1\" data-orientation=\"out\" data-index=\"1\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/true\"><\/div>\n<\/aside>\n<div data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/true\" class=\"Html-Block \">\n<h2>Les repr\u00e9sentants des patients exigent des \u00e9claircissements rapides<\/h2>\n<p>Depuis son approbation initiale, plus de 6\u00a0000 enfants dans le monde ont re\u00e7u cette th\u00e9rapie dans le cadre d\u2019\u00e9tudes ou de traitements r\u00e9guliers. L\u2019organisation de patients SMA Europe estime que le nombre d\u2019incidents signal\u00e9s est faible. N\u00e9anmoins, le repr\u00e9sentant a pris \u00e0 partie le fabricant du m\u00e9dicament en public. L\u2019organisation a \u00ab demand\u00e9 instamment \u00e0 Novartis de fournir des informations sur ce qui est connu, ce qui reste flou et ce que cela pourrait signifier pour les enfants ayant re\u00e7u un traitement \u00bb.<\/p>\n<\/div>\n<aside data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor\">\n<div id=\"ad-slot-mobile-hor-3\" data-orientation=\"hor\" data-index=\"3\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/true\"><\/div>\n<\/aside>\n<div data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/true\" class=\"Html-Block \">\n<p>Malgr\u00e9 les cas suspects signal\u00e9s, l\u2019association de patients d\u00e9conseille actuellement de prendre des mesures h\u00e2tives. Selon les informations de \u00ab 20 Minutes \u00bb, les m\u00e9decins traitants ne devront pas pour l\u2019instant modifier les exigences en mati\u00e8re de suivi. Le repr\u00e9sentant pr\u00e9cise : \u00ab\u00a0Sur la base des informations actuellement disponibles, aucun changement aux soins ou au suivi de routine de votre enfant n&rsquo;est recommand\u00e9, et aucune analyse, test ou surveillance suppl\u00e9mentaire n&rsquo;est requis pour le moment.\u00a0\u00bb<\/p>\n<\/div>\n<p><!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Depuis que le principe actif a \u00e9t\u00e9 approuv\u00e9 en 2019, la soci\u00e9t\u00e9 a enregistr\u00e9 un<\/p>\n","protected":false},"author":1,"featured_media":21114,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[86],"tags":[217,344,56,3535,528,135,4065,49,1325,540,261,3485],"class_list":["post-21113","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-les-maladies","tag-apres","tag-cas","tag-chez","tag-dollars","tag-dun","tag-enfants","tag-injections","tag-les","tag-million","tag-par","tag-traitement","tag-tumeurs","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-50","resize-featured-image"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - 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