{"id":20698,"date":"2026-10-26T09:11:12","date_gmt":"2026-10-26T08:11:12","guid":{"rendered":"https:\/\/rvh-synergie.org\/actualites\/nicholas-ofczarek-souffre-de-sep-depuis-30-ans-nabandonnez-pas\/"},"modified":"2026-10-26T09:11:13","modified_gmt":"2026-10-26T08:11:13","slug":"nicholas-ofczarek-souffre-de-sep-depuis-30-ans-nabandonnez-pas","status":"publish","type":"post","link":"https:\/\/rvh-synergie.org\/actualites\/nicholas-ofczarek-souffre-de-sep-depuis-30-ans-nabandonnez-pas\/","title":{"rendered":"Nicholas Ofczarek souffre de SEP depuis 30 ans : \u00ab N\u2019abandonnez pas \u00bb"},"content":{"rendered":"<p><!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><\/p>\n<div data-hk=\"0000a124212000a2310000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>L&rsquo;acteur autrichien Nicholas Ofczarek (55 ans) vit depuis pr\u00e8s de 30 ans avec la scl\u00e9rose en plaques (SEP), une maladie inflammatoire chronique du syst\u00e8me nerveux central jusqu&rsquo;\u00e0 pr\u00e9sent incurable. Dans une interview au magazine \u00ab Fleisch \u00bb, l&rsquo;acteur tr\u00e8s actif de th\u00e9\u00e2tre, de cin\u00e9ma et de t\u00e9l\u00e9vision (\u00ab The Pass \u00bb) a rendu publique sa maladie.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a2311000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>\u00ab\u00a0Parfois, c&rsquo;est un probl\u00e8me d&rsquo;acc\u00e9der simplement \u00e0 la sc\u00e8ne par les escaliers. Mais parfois, ce n&rsquo;est pas un probl\u00e8me du tout\u00a0\u00bb, a d\u00e9clar\u00e9 le membre de l&rsquo;ensemble du Burgtheater de Vienne.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231204\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor Ad-Slot-FC\">\n<div class=\"Ad-Slot-FC-Container \" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div class=\"Ad-Slot-FC-Window\">\n<div id=\"ad-slot-mobile-hor-2\" data-orientation=\"hor\" data-index=\"2\" data-slot=\"ad-slot\" data-device=\"mobile\"><\/div>\n<\/div>\n<\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a2313000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<h2>Nicholas Ofczarek souffre de scl\u00e9rose en plaques<\/h2>\n<p>Cependant, lorsqu\u2019une repr\u00e9sentation commence, MS passe au second plan par rapport \u00e0 Ofczarek. \u00ab\u00a0Sur sc\u00e8ne, je me sens \u00e0 l&rsquo;aise et mes limitations physiques me deviennent indiff\u00e9rentes\u00a0\u00bb, a d\u00e9clar\u00e9 l&rsquo;artiste, qui s&rsquo;est \u00e9galement produit au Residenztheater de Munich ces derni\u00e8res ann\u00e9es.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a2314000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>N\u00e9anmoins, ses limites sont d\u00e9sagr\u00e9ables pour un perfectionniste comme lui, estime l&rsquo;artiste. La honte est un compagnon courant de cette maladie &#8211; pas seulement pour lui, mais pour beaucoup de personnes vivant avec la SP.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231504\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-out\">\n<div id=\"ad-slot-mobile-out-1\" data-orientation=\"out\" data-index=\"1\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\"><\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a2316000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>\u00ab\u00a0Oui, je n&rsquo;abandonne pas\u00a0\u00bb, a d\u00e9clar\u00e9 Ofczarek \u00e0 propos de sa maladie et de sa carri\u00e8re r\u00e9ussie. Avec cette attitude, l&rsquo;acteur veut encourager les jeunes diagnostiqu\u00e9s avec la SEP : \u00ab\u00a0Que vous puissiez poursuivre et atteindre vos objectifs malgr\u00e9 et avec cette maladie\u00a0\u00bb, a-t-il d\u00e9clar\u00e9.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a23170\" class=\"Ad-Carousel mb-xl row \" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div data-hk=\"0000a124212000a231710\" class=\"col-lg-4\">\n<div data-hk=\"0000a124212000a23171104\" data-qa-ad-slot=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Ad-Slot Ad-Slot-desktop Ad-Slot-ver \" role=\"region\" aria-label=\"Anzeige 1\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div id=\"ad-slot-desktop-ver-1\" data-orientation=\"ver\" data-index=\"1\" data-slot=\"ad-slot\" data-device=\"desktop\"><\/div>\n<\/div>\n<\/div>\n<div data-hk=\"0000a124212000a231712\" class=\"col-lg-4\">\n<aside data-hk=\"0000a124212000a23171304\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-desktop Ad-Slot-ver Ad-Slot-FC\">\n<div class=\"Ad-Slot-FC-Container \" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div class=\"Ad-Slot-FC-Window\">\n<div id=\"ad-slot-desktop-ver-2\" data-orientation=\"ver\" data-index=\"2\" data-slot=\"ad-slot\" data-device=\"desktop\"><\/div>\n<\/div>\n<\/div>\n<\/aside>\n<\/div>\n<div data-hk=\"0000a124212000a231714\" class=\"col-lg-4\">\n<div data-hk=\"0000a124212000a23171504\" data-qa-ad-slot=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Ad-Slot Ad-Slot-desktop Ad-Slot-ver \" role=\"region\" aria-label=\"Anzeige 3\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div id=\"ad-slot-desktop-ver-3\" data-orientation=\"ver\" data-index=\"3\" data-slot=\"ad-slot\" data-device=\"desktop\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div data-hk=\"0000a124212000a2318000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<h2>La scl\u00e9rose en plaques est une \u00ab maladie aux mille visages \u00bb<\/h2>\n<p>La SEP est souvent qualifi\u00e9e de \u00ab maladie aux mille visages \u00bb, explique le neurologue Mimun Azizi dans un article pour FOCUS en ligne.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231904\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor\">\n<div id=\"ad-slot-mobile-hor-3\" data-orientation=\"hor\" data-index=\"3\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\"><\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a231a10000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>Elle peut s&rsquo;en sortir <strong>vari\u00e9t\u00e9 de sympt\u00f4mes<\/strong> express, selon la r\u00e9gion du syst\u00e8me nerveux qui est touch\u00e9e. Certains des signes les plus courants sont<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a11000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<ul>\n<li>engourdissement,<\/li>\n<li>Probl\u00e8mes de vision<\/li>\n<li>et des sympt\u00f4mes de paralysie.<\/li>\n<\/ul>\n<p>Ces sympt\u00f4mes n\u2019apparaissent souvent que lorsque de nombreuses voies du syst\u00e8me nerveux sont bloqu\u00e9es.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a12000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<h2>La SEP progresse par rechutes<\/h2>\n<p>Le type de maladie le plus courant survient g\u00e9n\u00e9ralement sous forme de pouss\u00e9es. Une pouss\u00e9e est l\u2019apparition soudaine de nouveaux sympt\u00f4mes ou une aggravation s\u00e9v\u00e8re des sympt\u00f4mes existants qui dure au moins 24 heures.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231a1304\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor\">\n<div id=\"ad-slot-mobile-hor-4\" data-orientation=\"hor\" data-index=\"4\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\"><\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a231a14000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>Apr\u00e8s une crise, les sympt\u00f4mes disparaissent g\u00e9n\u00e9ralement compl\u00e8tement ou seulement partiellement en six \u00e0 huit semaines \u2013 un processus appel\u00e9 r\u00e9mission. La fr\u00e9quence de ces crises varie d&rsquo;un patient \u00e0 l&rsquo;autre et est un indicateur de la progression de la maladie.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a15000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<h2>La maladie nerveuse est actuellement incurable<\/h2>\n<p>Malgr\u00e9 tous les progr\u00e8s de la recherche et du traitement, la SEP n\u2019est toujours pas gu\u00e9rissable. Toutefois, ces derni\u00e8res ann\u00e9es, les options de traitement de la SEP se sont consid\u00e9rablement \u00e9largies et am\u00e9lior\u00e9es.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231a1604\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-mobile Ad-Slot-hor\">\n<div id=\"ad-slot-mobile-hor-5\" data-orientation=\"hor\" data-index=\"5\" data-slot=\"ad-slot\" data-device=\"mobile\" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\"><\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a231a17000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>L\u2019objectif principal de tout traitement contre la SEP est de ralentir ou, dans le meilleur des cas, d\u2019arr\u00eater l\u2019activit\u00e9 et la progression de la maladie. Il est important d\u2019agir \u00e0 temps, car une fois perdues, les structures nerveuses sont irr\u00e9cup\u00e9rables.<\/p>\n<\/div>\n<aside data-hk=\"0000a124212000a231a1804\" data-qa-ad-slot class=\"Ad-Slot Ad-Slot-desktop Ad-Slot-hor Ad-Slot-FC\">\n<div class=\"Ad-Slot-FC-Container \" data-nosnippet=\"https:\/\/www.focus.de\/gesundheit\/news\/true\">\n<div class=\"Ad-Slot-FC-Window\">\n<div id=\"ad-slot-desktop-hor-2\" data-orientation=\"hor\" data-index=\"2\" data-slot=\"ad-slot\" data-device=\"desktop\"><\/div>\n<\/div>\n<\/div>\n<\/aside>\n<div data-hk=\"0000a124212000a231a19000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<h2>Les options de traitement pour la SEP<\/h2>\n<p>Le traitement de la SEP comprend plusieurs \u00e9l\u00e9ments\u00a0:<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a20000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<ul>\n<li>le traitement aigu des crises,<\/li>\n<li>le traitement de modification d&rsquo;\u00e9volution<\/li>\n<li>et un traitement symptomatique.<\/li>\n<\/ul>\n<p>La cortisone est souvent utilis\u00e9e pour traiter les crises aigu\u00ebs. Divers principes actifs sont disponibles pour une th\u00e9rapie de modification du cours. Une option th\u00e9rapeutique innovante, par exemple, consiste \u00e0 utiliser un anticorps, dans lequel les patients s&rsquo;administrent eux-m\u00eames le m\u00e9dicament mensuellement \u00e0 l&rsquo;aide d&rsquo;un stylo injecteur.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a21000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p>Le traitement symptomatique n&rsquo;a aucune influence sur l&rsquo;\u00e9volution r\u00e9elle de la SEP, mais peut aider \u00e0 faire face aux cons\u00e9quences et constitue donc un compl\u00e9ment utile au traitement qui modifie l&rsquo;\u00e9volution de la maladie.<\/p>\n<\/div>\n<div data-hk=\"0000a124212000a231a22000\" data-qa-article-content-text=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" data-text-milestone-block=\"https:\/\/www.focus.de\/gesundheit\/news\/true\" class=\"Html-Block \">\n<p><i>avec dpa<\/i><\/p>\n<\/div>\n<p><!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><br \/>\n<!--$--><br \/>\n<!--\/--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>L&rsquo;acteur autrichien Nicholas Ofczarek (55 ans) vit depuis pr\u00e8s de 30 ans avec la scl\u00e9rose<\/p>\n","protected":false},"author":1,"featured_media":20699,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[86],"tags":[38,544,11196,11194,11195,359,3120,1032],"class_list":["post-20698","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-les-maladies","tag-ans","tag-depuis","tag-nabandonnez","tag-nicholas","tag-ofczarek","tag-pas","tag-sep","tag-souffre","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-50","resize-featured-image"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - 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